It passed the House by a 420 - 9 - 3 vote on April 25, 2007. Without it, more high-risk people would buy insurance, causing rate unfairness. The first piece of federal legislation came into effect in 2000. To install click the Add extension button. [3], The second piece of federal legislation to address the use of genetic information and discrimination in the United States was the Genetic Information Nondiscrimination Act (GINA) of 2008. Excluded from the Act are also parties who are covered under Veterans Health Administration or Indian Health Services. [4], In 2008, on April 24 H.R. Fact Sheet; FAQs on the Genetic Information Nondiscrimination Act; Your Genetic Information and Your Health Plan - Know the Protections Against Discrimination; elaws Health Benefits Advisor; For Employers and Advisers. [32], Some people have genes that make them more susceptible to developing a disease as a result of an occupational exposure. The same bill was introduced into the United States Senate as S. 358 by Senators Olympia Snowe, Ted Kennedy, Mike Enzi, and Christopher Dodd. [31] Health plans discriminate against those who have disabilities or who have genetic conditions. The .gov means it’s official. Le président en exercice, George W. Bush, a signé la loi, en accord avec les pratiques législatives américaines, le 21 mai 2008. La loi Genetic Information Nondiscrimination Act (GINA) est une loi américaine qui interdit aux agences d'assurances maladie et aux employeurs l'usage impropre d'informations génétiques de particuliers. [23] The Genetic Non-Discrimination Act introduced amendments to the Canadian Human Rights Act and Canada Labour Code, and introduced national penalties for entities requiring an individual to undergo genetic testing as a condition for the provision of goods or services, or as a condition for entering or continuing a contract. 881, enacted May 21, 2008, GINA /ˈdʒiː.nə/ JEE-nə), is an Act of Congress in the United States designed to prohibit some types of genetic discrimination. California's Genetic Information Nondiscrimination Act, https://fr.wikipedia.org/w/index.php?title=Genetic_Information_Nondiscrimination_Act&oldid=176464893, Loi fédérale des États-Unis concernant la santé, Article contenant un appel à traduction en anglais, licence Creative Commons attribution, partage dans les mêmes conditions, comment citer les auteurs et mentionner la licence. It didn't matter how much I lied on my resume. [15] The new amendments require that (1) employee wellness programs are voluntary; (2) employers cannot deny health care coverage for non participation, or (3) take adverse employment actions against or coerce employees who do not participate in wellness programs. ", "An apportionment of human DNA diversity", "Population genetic analysis of the DARC locus (Duffy) reveals adaptation from standing variation associated with malaria resistance in humans", "Popular culture and genetics; friend, foe or something more complex? distinctive human characteristics and capacities are determined by genes. The Genetic Information Nondiscrimination Act of 2008 (Pub.L. A 1995 poll of the general public found that over 85% are concerned about access to use of genetic information by insurers and employers. As a result, when the data collected from testing is sold to research companies, it represents a biased sample of the population. Presidents have also issued executive orders which prohibit consideration of particular attributes in employment decisions of the United States government and its contractors. Signed into law by U.S. President Bill Clinton on February 8, 2000, the Executive Order prohibited all federal agencies and departments from using genetic information to discriminate in the hiring or promoting of federal employees. Although it is not required by federal law, state law and employer policies may also protect employees from harassment or discrimination based on marital status or sexual orientation. This resource provides an introduction to p.usa-alert__text {margin-bottom:0!important;} Washington, DC 20210 [3], Genetic Information Nondiscrimination Act, Genetic Privacy and Nondiscrimination Act of 1995 (1995; 104th Congress S. 1416) - GovTrack.us, Genetic Information Nondiscrimination in Health Insurance Act of 1995 (1995; 104th Congress H.R. U.S. federal law protects individuals from discrimination or harassment based on the following nine protected classes: sex, race, age, disability, color, creed, national origin, religion, or genetic information (added in 2008). Genetic discrimination is illegal in the U.S. after passage of the Genetic Information Nondiscrimination Act (GINA) on May 21, 2008. [4] The umbrella of genetic discrimination includes the notion of informed consent, which refers to an individual's right to make a decision about their participation in research with complete comprehension of the research study. [30], Genetic discrimination is a rising issue in Argentina. Patriot Act. [6], Genetic discrimination is illegal in the U.S. after passage of the Genetic Information Nondiscrimination Act (GINA) on May 21, 2008. 2748) - GovTrack.us, Genetics & Public Policy Center || GINA || About GINA || History, https://en.wikipedia.org/w/index.php?title=Genetic_policy_in_the_United_States&oldid=932401632, Creative Commons Attribution-ShareAlike License, This page was last edited on 25 December 2019, at 17:14. The company paid for the testing and counseling but received results that did not identify which workers had the gene. In addition, they are concerned that it would force employers to offer health plan coverage of all treatments for genetically-related conditions. These tests are easily accessible on the market and popularized by companies such as 23andMe and Ancestry.com. These tests can predict the risk of disease in adults, as well as establish prenatal and infant prognoses.